Yearly Archives: 2017

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Young Investigators Workshop at EAHAD 2018

EAHAD is excited to announce that our 2018 Congress will feature a half-day workshop for Young Investigators on 6 February on the topic of:

Finding the answer to your question – a workshop on study design

Research projects have the aim to answer questions that are essential for medical progress. To perform a successful research project, it is essential to formulate the right research question and to use the right design for the study.

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Q&A with Prof Hervé Chambost, Executive Committee member

 

At the 2017 EAHAD Annual General Meeting held in February in Paris, France, Professor Hervé Chambost was elected to the association’s Executive Committee. We took the opportunity to ask him a few questions to get to know him better and find out what motivated him to become involved.

 

Where do you work?

I work at La Timone Children’s Hospital and in the Faculty of Medicine Aix Marseille University in Marseille, France. My clinical activity is within the Haemophilia Care Centre, which is part of a large Department of Paediatric Haematology and Oncology.

 

Do you work with adults, children, or both?

The structure is a paediatric one, but we take care of both children and adults.

 

What is a typical workday like for you?

Combining care, management, research, and teaching makes every day a unique one!

 

What is the best thing about your job?

The diversity of the job and the enrichment that comes from teamwork.

 

What is the most challenging part of your job?

To provide the better care to every patient.

 

What motivated you to become involved in EAHAD?

Networking, research, and international communication is a good way to improve knowledge and optimise care.

 

Do you have any advice for young doctors entering the bleeding disorders field?

I would encourage them to share their experiences and not hesitate to get involved in the broader bleeding disorders community.

 

Finally, please answer the following: If I were a glass of wine, I’d be…

A Château Neuf du Pape.

 

 

 

Call for Nominations: EAHAD Executive Committee

EAHAD is calling for nominations for Executive Committee members to serve a 3-year term from February 2018-February 2021. There are 4 vacant positions.

 

To apply to join the Executive Committee, please complete the Nomination Form.

 

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Travel Grants to EAHAD 2018

EAHAD will be awarding travel grants to junior physicians and scientists (35 years old or younger), PhD students, post-doctoral researchers, nurses, physiotherapists, and other allied healthcare professionals wishing to attend the EAHAD 2018 Congress taking place in Madrid, Spain from 7-9 February.

 

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EAHAD-DB F7 Variant Database now available

by Christopher Ludlam, Chairman, EAHAD-DB Coagulation Factor Variant Database Steering Group*

 

The EAHAD-DB F7 Variant Database is now up on the web and is available.

 

This has been a major project for the EAHAD-DB Steering Group as the level of complexity is much greater than for variants in the F8 and F9 genes which result in haemophilia A and B. This is partly because there are two F7 genes per cell (being an autosomal disorder) and also because factor VII plasma levels are associated with some common polymorphisms.

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2017 Research Grant Recipients

EAHAD is proud to award research grants to support scientific projects aimed at improving the care of people with inherited bleeding disorders. The grant competition is open to all scientists and healthcare providers working in the field of inherited bleeding disorders in Europe and undertaking pre-clinical or clinical research. The grants of up to €50,000 each are for projects lasting up to three years.

 

For this inaugural competition, EAHAD received 23 applications from 11 countries.

 

The two recipients for 2017, first announced during the EAHAD 2017 Congress, are:

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Call for Applicants: EAHAD Nurses Committee

EAHAD is inviting haemophilia nurses to apply for one vacant spot on its Nurses Committee.

 

To apply to join the Nurses Committee, please send a short letter of motivation (maximum 300 words) outlining why you wish to be a part of the committee. Please also include in the letter the following information:

Full name

Haemophilia Treatment Centre you are affiliated with

Number of years working with people with bleeding disorders

Whether you work with children, adults, or both

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Connect with EAHAD on Social Media

Stay in touch with the latest news on EAHAD events and opportunities by following our Social Media accounts.

 

 

 

Follow us on Twitter: @EAHADnews

 

 

 

 

Follow us on LinkedIn

 

 

 

 

We also encourage you to engage with us through these platforms, for example by using the hashtag #EAHAD2017 on any social media posts you make about our upcoming congress.

 

 

Notice to members: Next EAHAD AGM on 2 February 2017

The Annual General Meeting (AGM) of EAHAD will take place during the EAHAD 2017 Congress in Paris, France.
The meeting will be held on Thursday, February 2 from 13:15-13:45 PM in the main plenary room of the Paris Marriott Rive Gauche Hotel and Conference Centre.

 

An agenda and other meeting documents are now available in the Members’ Section of the website and have been circulated by email to all current members.

 

If you have not yet renewed your membership for 2016-17, you can do so here: http://eahad.org/membership/

 

For more information on the EAHAD 2017 Congress, please visit: http://eahad2017.com/

EuroBloodNet approved as a European Reference Network

On 15 December 2016, the European Reference Network (ERN) Board of Member States voted to approve the EuroBloodNet ERN along with 22 other rare disease ERNs. EuroBloodNet encompasses rare haematological diseases, including haemophilia and other inherited bleeding disorders.

 

European Reference Networks, an initiative of the European Commission, are networks of healthcare professionals and centres of expertise aimed at improving quality, safety, and access to  highly specialised healthcare in Europe.

 

For more information on ERNs and the approval process, please visit:  http://ec.europa.eu/health/ern/implementation/call_en