Yearly Archives: 2018

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Prof Cedric Hermans appointed new Editor-in-Chief of Haemophilia

This week, Wiley appointed Prof Cedric Hermans as the new Editor-in-Chief, of Haemophilia, the official journal of EAHAD. Prof Hermans, EAHAD’s Past-President, replaces Prof Michael Makris and Dr Craig Kessler, who step down from their editorial posts this month and at the end of the year, respectively.

 

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EAHAD-EHC Joint Statement on novel non-replacement therapies

For the past three decades, haemophilia A and B patients have been treated using FVIII and FIX replacement concentrates. These therapies are well known to clinicians and patients.

 

A promising new era has now begun in the treatment of haemophilia and rare bleeding disorders. A series of novel, non-replacement therapies are becoming available, which may significantly impact the clinical care and quality of life of patients. The European Association for Haemophilia and Allied Disorders (EAHAD) and the European Haemophilia Consortium (EHC) welcome all novel therapies that have a meaningful impact on patients’ treatment, care and quality of life.

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EAHAD at “Women and Bleeding Disorders” EHC Round Table

On 19 June, EAHAD participated in the Round Table of Stakeholders on “Women and Bleeding Disorders”. Organised by the European Haemophilia Consortium (EHC), the event took place in the European Parliament in Brussels. Members of the European Parliament from different political groups also participated in the event, with Jana Žitňanská, MEP, chairing the Round Table.

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Warm welcome to two new EAHAD colleagues, Livia and Angelos

A main goal of EAHAD going into the future is increasing its employee base in order to provide a better service to our members. Towards this goal, two new staff joined the EAHAD team this year. In April, Livia Boagiu was hired as EUHASS Project Manager and in June Angelos Athanasopoulos took on the role of Communications and Events Officer.

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Interview with Sébastien Lobet, new Physio Committee Chair

In February, Dr Sébastien Lobet became the new Physiotherapists Committee Chair, taking over from Mr Piet de Kleijn. At the EAHAD Congress in Madrid, Spain, we sat down with Dr Lobet and asked him to shed some light on his background, the highlights and challenges associated with his work, and his ambitions for the committee and for physiotherapy for bleeding disorders in Europe.

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Interview with Elsbeth Müller-Kägi, new Nurses Committee Chair

In February, Martin Bedford handed over the reins of the EAHAD Nurses Committee to Elsbeth Müller-Kägi, who will serve as chair for the next two years. By way of introduction, we asked Ms Müller-Kägi a few questions to get an idea of the joys and challenges associated with her work as well as her experience as a haemophilia nurse, both in her country and on the European level.

 

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Interview with Professor Mike Makris, EAHAD’s new president

On 8 February 2018, the EAHAD Annual General Meeting took place in Madrid, Spain. Among other important matters that were discussed, the members voted and elected Professor Mike Makris as the association’s new president. Professor Makris succeeded Professor Cedric Hermans and will hold the position for the next two years (February 2018-January 2020).

 

To get some insight into Mike’s background as well as his vision and plans for EAHAD over the term of his presidency, we asked him to answer a few questions.

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11th Annual EAHAD Congress, Madrid, Spain – a recap

With 2076 participants from 74 countries in attendance, the 11th Annual Congress of EAHAD took place in Madrid, Spain, from 6 to 9 February 2018. Dr Víctor Jiménez Yuste served as president of the Congress, which brought together multidisciplinary bleeding disorders stakeholders from across Europe and beyond.

 

The event kicked off with the 2nd edition of the Pre-Congress Day, on 6 February featuring simultaneous translation into Spanish and dedicated sessions for physiotherapists, nurses and psychosocial professionals. On the same day, EAHAD launched a new initiative, the inaugural Young Investigators Workshop. The reception for the Workshop was very positive and you can read testimonials from the participants here.
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Testimonials from Young Investigators Workshop

On 6 February 2018 on the margins of our 2018 Congress,  EAHAD organised  its first-ever Young Investigators Workshop. The theme of the half-day workshop was “Finding the answer to your question – a workshop on study design”.

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Become a member of EAHAD or renew your membership

We are pleased to announce the launch of a new EAHAD membership website.

 

The new site allows you to easily access the Congress registration platform and benefit from reduced fees for members. It also provides quick links to the most relevant information for members including funding opportunities, upcoming events, and publications.

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