Yearly Archives: 2019

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Report from the EHC Round Table on Pain Management in Haemophilia

By Paul McLaughlin, EAHAD Physiotherapists Committee member, EAHAD Regional Coordinator (UK)

 

Pain is a symptom of many disease processes and sometimes can be present even without a disease. read more…

Report from the WCPT Congress 2019

Several members of the EAHAD Physiotherapists Network attended and presented at the World Confederation for Physical Therapy (WCPT) Congress 2019, the profession’s leading global meeting in Geneva in May 2019. More than 5000 colleagues from 131 countries attended the 3-day congress to hear global perspectives showcasing the best in physiotherapy research and practice. read more…

Physio Pre-Congress Day Sessions at EAHAD 2020

We welcome you to join us on 4 February for the 2020 edition of the EAHAD Multidisciplinary Pre-Congress Day.read more…

First meeting of the AFPH

On Thursday 17 October in Paris, at the National Sports Institute, the first inter-professional meeting of the Francophone Association of Physiotherapists specializing in Bleeding Disorders (Association Francophone de Physiothérapeutes spécialisés dans les Maladies Hémorragiques – AFPH) took place. The inaugural AFPH event brought together 45 physiotherapists and doctors from Belgium, France and Switzerland, with the objective to promote and develop physiotherapy in the field of bleeding disorders, as well as to strengthen the network between the professionals.read more…

EAHAD Gene Therapy Working Group launches

EAHAD is pleased to announce the formation of a Working Group on Gene Therapy, following the approval of a proposal to the Executive Committee in September. Chaired by Prof. Dr Wolfgang Miesbach, the Working Group will have a mandate of two years and will be comprised of six to eight members. A patient representative will also be invited to take part.read more…

Access the EAHAD Factor VII Gene (F7) Variant Database

By Emeritus Prof. Christopher Ludlam and Prof. John McVey, EAHAD-DB Coagulation Factor Variant Database Steering Group

 

The updated EAHAD Factor VII Gene (F7) Variant Database is now available at www.f7-db.eahad.org

 

The database now includes 221 unique variants, representing gene variants identified in 728 individuals. read more…

EAHAD 2020: Just 2 months away!

EAHAD 2020 is taking place from 4-7 February under the direction of Congress President, Prof. Dr. Karin Fijn van Draat. The theme of this year’s Congress is “A Golden Age of Treatment Choice”.read more…

Interview with Prof. Dr. Karin Fijn van draat, EAHAD 2020 President

Prof. Dr. Karin Fijn van Draat is not only a member of the EAHAD Executive Committee, but also the President of our 2020 Congress taking place from 5 to 7 February 2020 in The Hague, Netherlands. In the lead up to our 13th annual meeting, we had the opportunity to speak with Prof. Fijn van Draat about her background, the most rewarding and challenging aspects of being this year’s Congress President, as well as her views on what the future key issues will be in the haemophilia and allied disorders field in Europe.read more…

The EAHAD Psychosocial Group looks for a social worker to join

The EAHAD Psychosocial Professionals Working Group currently has one vacant spot and is inviting social workers involved in haemophilia and bleeding disorders care to apply. The position is for a three-year term that would begin in 2020.read more…

EAHAD Executive Committee: Call for Nominations

EAHAD is inviting its members to apply for 4 vacant spots on its Executive Committee.
read more…