Monthly Archives: April 2019

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EUHASS – Now accessible via the EAHAD website

EUHASS is a pharmacovigilance programme monitoring the safety of treatments for people with inherited bleeding disorders in Europe. Haemophilia treatment centres report adverse events directly to the EUHASS website where a live tally of reported events can be viewed. Quarterly and yearly surveillance reports are produced and made available to participating centres and product manufacturers, whilst product-specific reports are only shared with regulators and product manufacturers.

 
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EAHAD moves its legal base from the UK to Belgium

Following a unanimous decision on Thursday 7 February 2019 at the Annual General Meeting, EAHAD officially transferred its legal base from the United Kingdom to Belgium. Therefore, EAHAD is now an international non-profit association (AISBL) under Belgian law.
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Interview with Recognition Award recipient, Prof Edward Tuddenham

At the EAHAD 2019 Congress, in Prague, Czech Republic, we honoured two professionals for their work for and service to the haemophilia and allied disorders community in Europe and around the world, with the EAHAD Recognition Award for Outstanding Contribution to the Haemophilia and Allied Disorders field. One of the two recipients is Prof Edward Tuddenham, leading haematologist from the Royal Free Hospital in London. We took the opportunity to interview Prof Tuddenham on his beginnings, his thoughts on the shape of the haemophilia field today, as well as his future plans.
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Interview with Recognition Award recipient, Mr Piet de Kleijn

At the EAHAD 2019 Congress, in Prague, Czech Republic, we honoured two professionals for their work for and service to the haemophilia and allied disorders community in Europe and around the world, with the EAHAD Recognition Award for Outstanding Contribution to the Haemophilia and Allied Disorders field. One of the two recipients is physiotherapist Mr Piet de Kleijn, a current member and past chair of the EAHAD Physiotherapists Committee. We took the opportunity to interview him on his beginnings, his thoughts on the shape of the haemophilia field today, and his future plans.
 
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Awards given for top Poster & Oral Abstracts at EAHAD 2019

At the EAHAD 2019 Congress, in Prague, Czech Republic we had the great opportunity to honour contributions made to the field of bleeding disorders. On the final day of the meeting, Friday 8 February, awards were given out to the top poster and oral abstract presentations.
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EAHAD Physiotherapists Committee survey published in Haemophilia

In March 2019, “Scope of practice of haemophilia physiotherapists: A European survey” was published in Haemophilia. Developed by the EAHAD Physiotherapists Committee in 2018, the web‐based survey was conducted with the aim to quantify the role and scope of practice of physiotherapists involved in haemophilia care. It included questions concerning work practices, assessment and treatment activities, and level of autonomy.
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EAHAD Women and Bleeding Disorders Working Group hold first official meeting

On February 6, during the EAHAD 2019 Congress, in Prague, Czech Republic, the inaugural meeting of the EAHAD Women and Bleeding Disorders Working Group took place. After its establishment in September and a teleconference in November 2018, this meeting was the first time the members of the Working Group had the opportunity to meet in person, discuss, plans, and finetune the priorities for the year ahead.
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A warm welcome to two new Nurses Committee members

In August 2018, the EAHAD Nurses Committee launched a call for applications for two new members. After careful consideration, Simon Fletcher, from the United Kingdom, and Nanda Uitslager, from the Netherlands were selected to join the six-member group. We are delighted to welcome Simon and Nanda, who officially joined the committee this February on the occasion of the EAHAD 2019 Annual Congress. We are positive that their experience and knowledge will critically contribute to the future quality of work of the Nurses Committee. You can read more about Simon’s and Nanda’s respective backgrounds by clicking the links below.
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2019 EAHAD Research Grants recipients announced

The objective of the EAHAD Research Grants is to foster pre-clinical and clinical research collaborations in Europe and to support scientific projects aimed at improving the care of patients with inherited and acquired bleeding disorders.

 

For the 2019 cycle, we received 16 applications of great quality and scientific interest from 11 European countries. These were reviewed by a committee and by subject matter experts. Following the final decision, two 2019 Research Grants recipients were announced during the last day of the EAHAD 2019 Congress. They are:
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12th Annual EAHAD Congress, Prague, Czech Republic – A recap

From 5 to 8 February, the EAHAD 2019 Congress took place in Prague, Czech Republic. Prague, the city in the heart of Europe, welcomed more than 2600 delegates from over 80 countries for an unforgettable scientific experience. The 12th Annual Congress took place at the Prague Congress Centre, with a beautiful view over the historic city, and was the place to be for discussions on the latest treatment developments and ongoing clinical challenges in managing haemophilia and other related bleeding disorders.
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