EUHANET

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European Haemophilia Network (EUHANET)

 

The EUHANET project was aimed at establishing a network of haemophilia centres to work together on a number of related projects to improve the care of European citizens with inherited bleeding disorders.

 

The project was led from Sheffield in the UK by Prof Mike Makris and involved five associated partners: the European Haemophilia Consortium (EHC), the European Association for Haemophilia and Allied Disorders (EAHAD), University Medical College Utrecht, Medical Data Solutions and Services Ltd (MDSAS) and Fondazione IRCCS Ca’ Granda in Milan.

 

EUHANET was co-funded by the European Commission via its Executive Agency for Health and Consumers (EAHC) and 12 pharmaceutical companies and ran from June 2012 to May 2015.

 

The project involved 4 main areas of work:

 

1) the formulation and implementation of the European Haemophilia Centre Certification Scheme (www.euhanet.org/MappedCentres.aspx);
2) the creation of the Haemophilia Central Website (www.haemophiliacentral.org);
3) the continuation and extension of the EUHASS adverse event reporting system (www.euhass.org); and
4) the collection of prospective data on fibrinogen and FVIII deficiencies through the PRO-RBDD project (http://eu.rbdd.org/).

 

EAHAD is proud to have taken part in this project and we look forward to continuing this work going forward.

 

For more information about EUHANET, please visit the website: www.euhanet.org

 

To download the final report on the EUHANET project, please click here.