On 7 June, EAHAD in collaboration with the Helsinki University Central Hospital Coagulation Disorders Unit and with support from the World Federation of Hemophilia (WFH) Twinning Program, held a day-long multidisciplinary update meeting on for haemophilia healthcare professionals from the Baltic region. Thirty-eight participants attended the meeting including members of the multidisciplinary teams from nine centres treating bleeding disorders patients in Estonia, Finland, and Lithuania.
The day started with a welcome from host Prof Riitta Lassila, who presented the programme for the day. Participants then introduced themselves and discussed a first case study, before breaking into two groups for parallel morning sessions for physiotherapists and nurses focused on the practical aspects of haemophilia care. Physiotherapists discussed two more complex case studies, while nurses engaged in a planning session focused on setting objectives for haemophilia nursing care over the next four years.
In the afternoon, the chairs of EAHAD’s nurses and physiotherapists committees gave updates on their committees’ work and upcoming opportunities for regional engagement. This was followed by presentations from the paediatric and adult haemophilia treatment centres in Tallin and Tartu, Estonia and Vilnius, Lithuania. Following these updates, Prof Elina Armstrong from Helsinki led a follow-up discussion on the case studies from the morning physiotherapy session, reviewing each case in terms of lessons learned and best strategies going forward.
The day concluded with updates from the pharmaceutical companies who supported the event on new developments in haemophilia products with information specific to the Baltic region.