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    EUHASS – Now accessible via the EAHAD website

    EUHASS is a pharmacovigilance programme monitoring the safety of treatments for people with inherited bleeding disorders in Europe. Haemophilia treatment centres report adverse events directly to the EUHASS website where a live tally of reported events can be viewed. Quarterly and yearly surveillance reports are produced and made available to participating centres and product manufacturers, whilst product-specific reports are only shared with regulators and product manufacturers.

     

    The aims of EUHASS are:

     

    - To monitor the safety of treatments for people with haemophilia and other inherited bleeding disorders in Europe.

     

    - To inform clinicians, regulators, and other interested parties of the treatment patterns and adverse events reported for these patients in Europe.

     

    - To set up a publicly available directory containing information and publications lists for all the clotting factor products used in Europe to treat haemophilia and other inherited bleeding disorders.

     

    From the outset, EAHAD has been one of the main partners and so it followed naturally that the project be transferred to EAHAD upon the retirement of EUHASS’ initial Project Manager, Estelle Gilman. Now being managed by Livia Boagiu, EUHASS is being run from the EAHAD office in Brussels.

     

    Along with this move, we have facilitated access to information about EUHASS by creating a direct link to the EUHASS website on the EAHAD website, under the Projects tab.

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    EAHAD moves its legal base from the UK to Belgium

    Following a unanimous decision on Thursday 7 February 2019 at the Annual General Meeting, EAHAD officially transferred its legal base from the United Kingdom to Belgium. Therefore, EAHAD is now an international non-profit association (AISBL) under Belgian law.

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    Interview with Recognition Award recipient, Prof Edward Tuddenham

    At the EAHAD 2019 Congress, in Prague, Czech Republic, we honoured two professionals for their work for and service to the haemophilia and allied disorders community in Europe and around the world, with the EAHAD Recognition Award for Outstanding Contribution to the Haemophilia and Allied Disorders field. One of the two recipients is Prof Edward Tuddenham, leading haematologist from the Royal Free Hospital in London. We took the opportunity to interview Prof Tuddenham on his beginnings, his thoughts on the shape of the haemophilia field today, as well as his future plans.

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    Interview with Recognition Award recipient, Mr Piet de Kleijn

    At the EAHAD 2019 Congress, in Prague, Czech Republic, we honoured two professionals for their work for and service to the haemophilia and allied disorders community in Europe and around the world, with the EAHAD Recognition Award for Outstanding Contribution to the Haemophilia and Allied Disorders field. One of the two recipients is physiotherapist Mr Piet de Kleijn, a current member and past chair of the EAHAD Physiotherapists Committee. We took the opportunity to interview him on his beginnings, his thoughts on the shape of the haemophilia field today, and his future plans.
     

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    Awards given for top Poster & Oral Abstracts at EAHAD 2019

    At the EAHAD 2019 Congress, in Prague, Czech Republic we had the great opportunity to honour contributions made to the field of bleeding disorders. On the final day of the meeting, Friday 8 February, awards were given out to the top poster and oral abstract presentations.

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