Yearly Archives: 2020

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EAHAD co-signs ISTH Covid-19 Consensus Statement

Today, 15 July 2020, the European Association for Haemophilia and Allied Disorders together with 69 other thrombosis, haematology and patient safety organisations, published a Consensus Statement on the increased risk of deadly blood clots in Covid-19 patients.read more…

2019 EAHAD Annual Report – Now available!

The 2019 EAHAD Annual Report has just been published. In it, readers will find information on all EAHAD-related activities of the past year. read more…

EAHAD – EHC Joint statement on AAV8-based ASPIRO clinical trial

The European Association for Haemophilia and Allied Disorders (EAHAD) and European Haemophilia Consortium (EHC) have become aware of two deaths in patients with X-linked myotubular myopathy (XLMTM) on an AAV8-based gene therapy (AT132) in the phase 1/2 ASPIRO clinical trial conducted by Audentes, a subsidiary of Astellas. EHC and EAHAD are closely monitoring developments in this area due to this adeno-associated viral vector (AAV8) also being used in haemophilia gene therapy trials.read more…

Covid-19 and psychosocial care: Recommendations and survey

The Covid-19 pandemic has caused a multi-dimensional crisis: medical, psychological, economic, occupational, and educational and more. People with bleeding disorders have suffered anxiety and concern regarding the influence of Covid-19 on their condition as well as uncertainty as to whether their treatments will continue to be accessible during this pandemic.read more…

EAHAD Webinar: Covid-19 and Haemophilia

Hosted by Prof. Michael Makris and with three insightful presentations by Prof. Víctor Jiménez Yuste, Prof. Flora Peyvandi, and Prof. Cedric Hermans, the EAHAD Webinar on Covid-19 and Haemophilia (originally streamed on Tuesday 2 June 2020) is now available for everyone to watch.read more…

Some words of farewell for Piet de Kleijn

By Dr Sébastien Lobet, EAHAD Physiotherapists Committee past Chair
 
Dear Piet,read more…

Report from the 2020 HCPA Annual General Meeting

By Paul McLaughlin, EAHAD Physiotherapists Committee Vice-Chair
 
The 14th annual general meeting of the UK Haemophilia Chartered Physiotherapists Association (HCPA) was held on 5 and 6 March 2020. read more…

EAHAD 2020 Physiotherapy Sessions – a recap

 
On 4 February 2020 in The Hague, Netherlands, the Physiotherapists Committee welcomed colleagues from Europe and around the world to the EAHAD Multidisciplinary Pre-Congress Day physiotherapy sessions.read more…

EAHAD – EHC Statement on Gene Therapies Hub-and-Spoke Model

For the past three decades, haemophilia A and B have been treated using FVIII and FIX replacement concentrates, and their treatment and care has been managed through comprehensive or standard haemophilia treatment centres.read more…

Sharing physiotherapy knowledge in Hungary

By Marie Katzerova, EAHAD Central Europe Regional Coordinator, EAHAD Physiotherapists Committee member

 

As the EAHAD Central Europe regional coordinator (Czech Republic, Hungary, Romania, Slovakia, Slovenia), I wanted to continue my journey through the countries of my region and, in November 2019, after Slovakia and Romania, I went to share my knowledge to Budapest, the beautiful capital of Hungary.read more…