Author Archives: Aislin Ryan

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Call for Applicants: EAHAD Nurses Committee

EAHAD is inviting haemophilia nurses to apply for one vacant spot on its Nurses Committee.


To apply to join the Nurses Committee, please send a short letter of motivation (maximum 300 words) outlining why you wish to be a part of the committee. Please also include in the letter the following information:

Full name

Haemophilia Treatment Centre you are affiliated with

Number of years working with people with bleeding disorders

Whether you work with children, adults, or both

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Connect with EAHAD on Social Media

Stay in touch with the latest news on EAHAD events and opportunities by following our Social Media accounts.




Follow us on Twitter: @EAHADnews





Follow us on LinkedIn





We also encourage you to engage with us through these platforms, for example by using the hashtag #EAHAD2017 on any social media posts you make about our upcoming congress.



Notice to members: Next EAHAD AGM on 2 February 2017

The Annual General Meeting (AGM) of EAHAD will take place during the EAHAD 2017 Congress in Paris, France.
The meeting will be held on Thursday, February 2 from 13:15-13:45 PM in the main plenary room of the Paris Marriott Rive Gauche Hotel and Conference Centre.


An agenda and other meeting documents are now available in the Members’ Section of the website and have been circulated by email to all current members.


If you have not yet renewed your membership for 2016-17, you can do so here:


For more information on the EAHAD 2017 Congress, please visit:

EuroBloodNet approved as a European Reference Network

On 15 December 2016, the European Reference Network (ERN) Board of Member States voted to approve the EuroBloodNet ERN along with 22 other rare disease ERNs. EuroBloodNet encompasses rare haematological diseases, including haemophilia and other inherited bleeding disorders.


European Reference Networks, an initiative of the European Commission, are networks of healthcare professionals and centres of expertise aimed at improving quality, safety, and access to  highly specialised healthcare in Europe.


For more information on ERNs and the approval process, please visit:

Renew your EAHAD membership or become a member

The new EAHAD Membership cycle for 2016/17 began on 1 November 2016. If you have not done so already, we would like to remind you to please renew your membership to EAHAD. If you are not yet a member, we encourage you to join.

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Register for the Pre-congress Day for Nurses and Physiotherapists

EAHAD is keen to develop interactions between all members of the multidisciplinary team involved in care of patients with haemophilia.


For several years now, the Executive Committee of EAHAD has included the chair of the EAHAD Nurses Committee as an ex-officio representative, and this has been followed last year with the addition of the chair of the newly formed EAHAD Physiotherapists Committee.

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Call for Nominations: EAHAD Executive Committee Members

*** Deadline extended to: 30 November 2016 ***


EAHAD is inviting its members to apply for two vacant spots on its Executive Committee.


To apply to join the Executive Committee, please download and complete the nomination more…

Travel Grants to EAHAD 2017: Apply by 1 December

Travel grants are available to junior physicians and scientists (35 years old or younger), PhD students, post-doctoral researchers, nurses, physiotherapists, and other allied healthcare professionals wishing to attend the EAHAD 2017 Congress taking place in Paris, France from 1-3 February.


The grants cover the registration fee and travel and accommodation expenses to attend the congress up to an amount of 1500 EUR. The award will be presented on-site at the congress. The award recipient must come in person to receive her/his grant (at the speakers’ desk, from 12:30 on Friday, 3 February 2017). No payment will be made before or after the Congress.

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Multidisciplinary Baltic Haemophilia Workshop held in Helsinki

On 7 June, EAHAD in collaboration with the Helsinki University Central Hospital Coagulation Disorders Unit and with support from the World Federation of Hemophilia (WFH) Twinning Program, held a day-long multidisciplinary update meeting on for haemophilia healthcare professionals from the Baltic region. Thirty-eight participants attended the meeting including members of the multidisciplinary teams from nine centres treating bleeding disorders patients in Estonia, Finland, and Lithuania.

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EAHAD and EHC share expertise at summer camp in Estonia

by Marie Katzerová, member of the EAHAD Physiotherapists Committee and physiotherapist from Czech Republic


At the beginning of August, around 50 people with haemophilia, their families, and healthcare professionals from Estonia gathered for a four-day summer camp in Värska, Estonia. Along with Prof Paul Giangrande (EHC) and Dr Klaus Ӧsterholm (Helsinki, Finland), I was invited to join in the summer camp to deliver educational sessions for the participants.

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