Author Archives: Angelos Athanasopoulos

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EAHAD co-signs Covid-19 vaccination guidance

Guidance from the World Federation of Hemophilia (WFH), the European Association for Haemophilia and Allied Disorders (EAHAD), the European Haemophilia Consortium (EHC), and the U.S. National Hemophilia Foundation (NHF)
 
It is important that haemophilia treatment centres, in close collaboration with patient organisations, take action to inform people with bleeding disorders about the Covid-19 vaccines and contribute to an effective vaccination programme.read more…

2021 EAHAD membership cycle launched!

Our 2021 membership cycle has just been launched! Benefit from a one-year subscription to Haemophilia Journal; access our e-newsletter for regular updates on EAHAD activities and initiatives; and be eligible to join our committees and vote at the Annual General Meeting. More benefits to come in the coming months!
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Physio Committee Interview: Isolde Kuijlaars

In the first edition of the EAHAD Physiotherapists Committee “Meet the Author” interview series, Isolde Kuijlaars speaks about her new original article titled “Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS”.
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Adjustable surgery workflow by our Nurses Committee

The EAHAD Nurses Committee have just released their most recent project, the “Adjustable surgery workflow in patients with bleeding disorders“. The detailed workflow adresses the different phases, tasks, and responsibilities regarding surgery in patients with a bleeding disorder. By recording what needs to be done by each person at each time, the process becomes clear, controllable, and correctable. The workflow is accompanied by a checklist, which must be adapted based on local circumstances, guidelines and practice.

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2021 Research Grant cycle now open

The 2021 EAHAD Research Grant call for applications is now open. The application cycle runs yearly and the winner will be announced in July 2021.
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EAHAD PT Committee Letter to the Editor published in Haemophilia

In October 2020, the EAHAD Physiotherapists Committee published in Haemophilia a letter to the editor titled “Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice”. The Committee called upon funders, medical professionals, centre directors and patient organisations to collaborate in the development and enhanced provision of physiotherapy care.read more…

In October 2020, the EAHAD Physiotherapists Committee published in Haemophilia a letter to the editor titled “Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice”. The Committee called upon funders, medical professionals, centre directors and patient organisations to collaborate in the development and enhanced provision of physiotherapy care.read more…

ISTH and EAHAD Educational Partnership on Gene Therapy

The International Society on Thrombosis and Haemostasis (ISTH) and the European Association for Haemophilia and Allied Disorders (EAHAD) have announced an educational partnership to collaborate on components of the ISTH Gene Therapy in Hemophilia Education Initiative.read more…

EAHAD co-signs bureaucracy in clinical trials statement

The European Association for Haemophilia and Allied Disorders joined the European Hematology Association and other medical societies and patient advocates across disciplines to call for urgent action to make clinical trials less bureaucratic and more patient-centered, efficient and cheaper.read more…

“Super-Six Challenge” online sessions by our Physio Committee

Throughout the summer, members of our Physiotherapists Committee presented the “Super-Six Challenge for Haemophilia” focusing on the ankle, the knee, and the elbow, as part of the European Haemophilia Consortium’s #thisway online campaign.read more…

Our Nurses Committee is looking for a new member to join

The EAHAD Nurse Committee currently has one vacant spot and is inviting nurses involved in haemophilia and bleeding disorders care to apply. The position is for a three-year term that would begin in February 2021.read more…