Author Archives: Angelos Athanasopoulos

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“Super-Six Challenge” online sessions by our Physio Committee

Throughout the summer, members of our Physiotherapists Committee presented the “Super-Six Challenge for Haemophilia” focusing on the ankle, the knee, and the elbow, as part of the European Haemophilia Consortium’s #thisway online campaign.read more…

Our Nurses Committee is looking for a new member to join

The EAHAD Nurse Committee currently has one vacant spot and is inviting nurses involved in haemophilia and bleeding disorders care to apply. The position is for a three-year term that would begin in February 2021.read more…

EAHAD 2021 Virtual Congress Announcement

After careful consideration, the EAHAD 2021 Organising Committee has decided to make the upcoming EAHAD 2021 Congress a fully virtual event, taking place from 3 until 5 February 2021.read more…

EAHAD co-signs ISTH Covid-19 Consensus Statement

Today, 15 July 2020, the European Association for Haemophilia and Allied Disorders together with 69 other thrombosis, haematology and patient safety organisations, published a Consensus Statement on the increased risk of deadly blood clots in Covid-19 patients.read more…

2019 EAHAD Annual Report – Now available!

The 2019 EAHAD Annual Report has just been published. In it, readers will find information on all EAHAD-related activities of the past year. read more…

EAHAD – EHC Joint statement on AAV8-based ASPIRO clinical trial

The European Association for Haemophilia and Allied Disorders (EAHAD) and European Haemophilia Consortium (EHC) have become aware of two deaths in patients with X-linked myotubular myopathy (XLMTM) on an AAV8-based gene therapy (AT132) in the phase 1/2 ASPIRO clinical trial conducted by Audentes, a subsidiary of Astellas. EHC and EAHAD are closely monitoring developments in this area due to this adeno-associated viral vector (AAV8) also being used in haemophilia gene therapy trials.read more…

Covid-19 and psychosocial care: Recommendations and survey

The Covid-19 pandemic has caused a multi-dimensional crisis: medical, psychological, economic, occupational, and educational and more. People with bleeding disorders have suffered anxiety and concern regarding the influence of Covid-19 on their condition as well as uncertainty as to whether their treatments will continue to be accessible during this pandemic.read more…

EAHAD Webinar: Covid-19 and Haemophilia

Hosted by Prof. Michael Makris and with three insightful presentations by Prof. Víctor Jiménez Yuste, Prof. Flora Peyvandi, and Prof. Cedric Hermans, the EAHAD Webinar on Covid-19 and Haemophilia (originally streamed on Tuesday 2 June 2020) is now available for everyone to watch.read more…

Some words of farewell for Piet de Kleijn

By Dr Sébastien Lobet, EAHAD Physiotherapists Committee past Chair
 
Dear Piet,read more…

Report from the 2020 HCPA Annual General Meeting

By Paul McLaughlin, EAHAD Physiotherapists Committee Vice-Chair
 
The 14th annual general meeting of the UK Haemophilia Chartered Physiotherapists Association (HCPA) was held on 5 and 6 March 2020. read more…