Publications

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2022

European principles of care for physiotherapy provision for persons with inherited bleeding disorders: Perspectives of physiotherapists and patients
 
Gene therapy of hemophilia: Hub centres should be haemophilia centres: A joint publication of EAHAD and EHC

2021

Delivery of AAV-based gene therapy through haemophilia centres—A need for re-evaluation of infrastructure and comprehensive care: A Joint publication of EAHAD and EHC

 
European principles of care for women and girls with inherited bleeding disorders

 
Adoption of emicizumab (Hemlibra®) for hemophilia A in Europe: Data from the 2020 European Association for Haemophilia and Allied Disorders survey

2020

European Principles of Inhibitor Management in Patients with Haemophilia: Implications of new treatment options

 

The EAHAD blood coagulation factor VII variant database
 

The European Association for Haemophilia and Allied Disorders (EAHAD) Coagulation Factor Variant Databases: Important resources for haemostasis clinicians and researchers
 

Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres
 

Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice
 

2019

Scope of practice of haemophilia physiotherapists: A European survey

2018

European Principles of Inhibitor Management

2016

European Curriculum for Nurses working in Haemophilia

2009

European Curriculum for Thrombosis and Haemostasis

2008

European Principles of Haemophilia Care