Publications

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2022

Promoting physical activity for people with haemophilia in the age of new treatments

 

European principles of care for physiotherapy provision for persons with inherited bleeding disorders: Perspectives of physiotherapists and patients

 

Gene therapy of hemophilia: Hub centres should be haemophilia centres: A joint publication of EAHAD and EHC

2021

Delivery of AAV-based gene therapy through haemophilia centres—A need for re-evaluation of infrastructure and comprehensive care: A Joint publication of EAHAD and EHC

 

European principles of care for women and girls with inherited bleeding disorders

 

Adoption of emicizumab (Hemlibra®) for hemophilia A in Europe: Data from the 2020 European Association for Haemophilia and Allied Disorders survey

2020

European Principles of Inhibitor Management in Patients with Haemophilia: Implications of new treatment options

 

The EAHAD blood coagulation factor VII variant database

The European Association for Haemophilia and Allied Disorders (EAHAD) Coagulation Factor Variant Databases: Important resources for haemostasis clinicians and researchers

 

Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres

 

Comprehensive care on paper only? The challenge for physiotherapy provision in day-to-day haemophilia practice

 

2019

Scope of practice of haemophilia physiotherapists: A European survey

2018

European Principles of Inhibitor Management

2016

European Curriculum for Nurses working in Haemophilia

2009

European Curriculum for Thrombosis and Haemostasis

2008

European Principles of Haemophilia Care