The European Principles of Haemophilia Care were developed by the Interdisciplinary Working Group from 2005-2007. They set standards for the provision of comprehensive haemophilia care that should be available in each European country.
The European Principles of Haemophilia Care have been endorsed by the European Haemophilia Consortium (EHC) and the World Federation of Hemophilia (WFH). On 26 February 2009 the Principles were officially presented by EAHAD and the EHC at the European Parliament in Brussels. They have since been used throughout Europe as an important tool to assess the level of haemophilia care in a given country and advocate for improvements where optimal standards are lacking.
These 10 principles are as follows:
1. A Central Haemophilia organisation with supporting local groups
2. National Haemophilia Patient Registries
3. Comprehensive Care Centres and Haemophilia Treatment Centres
4. Partnership in the Delivery of Haemophilia Care
5. Safe and Effective Concentrates at Optimum Treatment Levels
6. Home Treatment and Delivery
7. Prophylaxis (Preventative) Treatment
8. Specialist Services and Emergency Care
9. Management of Inhibitors
10. Education and Research
The European Principles of Haemophilia Care were published in Haemophilia in March 2008.
Click here to access the European Principles of Haemophilia Care.