The EAHAD Women and Bleeding Disorders Working Group was formed in September 2018. Its aims are to:
1) gather, concentrate and disseminate knowledge among European healthcare providers on the diagnosis and treatment of women-specific bleeding symptoms in inherited bleeding disorders;
2) define research priorities within the European medical society regarding women with inherited bleeding disorders;
3) diminish misdiagnosis and under treatment of women with bleeding disorders in Europe.
The members of the working group are:
| Name | Profession | Institution | Country |
|---|---|---|---|
| Dr Karin van Galen (Chair) | Haematologist | Van Creveldkliniek, UMC Utrecht | The Netherlands |
| Dr Roseline d’Oiron | Haematologist | Hopital Bicetre, Paris | France |
| Petra Elfvinge | Nurse | Karolinska University, Stockholm | Sweden |
| Prof. Keith Gomez | Haematologist | Royal Free Hospital, London | United Kingdom |
| Naja Skouw-Rasmussen | Patient representative | EHC Steering Committee | Denmark |
| Prof. Rezan Kadir | Consultant Gynaecologist | Royal Free Hospital, London | United Kingdom |
| Dr Michelle Lavin | Haematologist | Royal College of Surgeons, Dublin | Ireland |
| Dr E.P. Mauser-Bunschoten | Haematologist | Van Creveldkliniek, UMC Utrecht | The Netherlands |
Women and Bleeding Disorders Working Group projects
- European principles of care for women and girls with inherited bleeding disorders
- AR - European principles of care for women and girls with inherited bleeding disorders (Arabic translation)
- DE - European principles of care for women and girls with inherited bleeding disorders (German translation)
- DE - European principles of care for women and girls with inherited bleeding disorders Infographic (German translation)
- ES - European principles of care for women and girls with inherited bleeding disorders (Spanish translation)
- ES - European principles of care for women and girls with inherited bleeding disorders Infographic (Spanish translation)
- IT - European principles of care for women and girls with inherited bleeding disorders (Italian translation)
- IT - European principles of care for women and girls with inherited bleeding disorders Infographic (Italian translation)
- RU - European principles of care for women and girls with inherited bleeding disorders (Russian translation)
- RU - European principles of care for women and girls with inherited bleeding disorders Infographic (Russian translation)
- Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres
- Managing women‐specific bleeding in inherited bleeding disorders: A multidisciplinary approach
- EAHAD Webinar: European Principles of Care for Women and Girls with Bleeding Disorders
If you are a healthcare professional working in the area of Women and Bleeding Disorders and would like to learn more about or get involved in our work, you can sign up to join the EAHAD Women and Bleeding Disorders Working Group Network, by clicking the button below.
Sign up for the EAHAD WBD WG Network
Consult the Women and Bleeding Disorders Working Group Terms of Reference (PDF)