Women and Bleeding Disorders Working Group

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The EAHAD Women and Bleeding Disorders Working Group was formed in September 2018. Its aims are to:

 

1) gather, concentrate and disseminate knowledge among European healthcare providers on the diagnosis and treatment of women-specific bleeding symptoms in inherited bleeding disorders;

2) define research priorities within the European medical society regarding women with inherited bleeding disorders;

3) diminish misdiagnosis and under treatment of women with bleeding disorders in Europe.
 
The members of the working group are:
 

NameProfessionInstitutionCountry
Dr Karin van Galen (Chair)HaematologistVan Creveldkliniek, UMC UtrechtThe Netherlands
Dr Roseline d’OironHaematologistHopital Bicetre, ParisFrance
Petra ElfvingeNurseKarolinska University, StockholmSweden
Prof. Keith GomezHaematologistRoyal Free Hospital, London United Kingdom
Naja Skouw-RasmussenPatient representative EHC Steering CommitteeDenmark
Prof. Rezan KadirConsultant GynaecologistRoyal Free Hospital, London United Kingdom
Dr Michelle LavinHaematologistRoyal College of Surgeons, DublinIreland
Dr E.P. Mauser-Bunschoten Haematologist Van Creveldkliniek, UMC UtrechtThe Netherlands
Ellen van LoonMedical psychologistUZ Leuven, LeuvenBelgium
 
Women and Bleeding Disorders Working Group projects
Clinical management of woman with bleeding disorders: A survey among European haemophilia treatment centres
Managing women‐specific bleeding in inherited bleeding disorders: A multidisciplinary approach
EAHAD Webinar: European Principles of Care for Women and Girls with Bleeding Disorders
 
If you are a healthcare professional working in the area of Women and Bleeding Disorders and would like to learn more about or get involved in our work, you can sign up to join the EAHAD Women and Bleeding Disorders Working Group Network, by clicking the button below.